A YOUNG boy suffering with a rare genetic disease is now able to make his many trips to hospital appointments in greater safety thanks to the donation of a car seat from a West Devon charity.

Isaac Walton of Tavistock has Charge Syndrome and spends a lot of time on the road visiting hospitals in Plymouth, Exeter and Bristol for treatment.

Charge Syndrome occurs in around one in 10,000 births, involving extensive medical and physical difficulties that differ from child to child. The pattern of malformations varies among individuals with this disorder, and infants often have multiple life-threatening medical conditions. Although the medical severity of Charge can vary between individuals, most have hearing loss, vision loss and balance problems which delay their development and communication.

All individuals are likely to require medical and educational intervention for many years, but despite the obstacles, children with Charge Syndrome often surpass their medical, physical, educational and social expectations.

Because Isaac spends so much time on the road, Tavistock charity The Mary Budding Trust, which supports local children under 11, provided a special Klippan Safety seat which should see him through the next couple of years.

For more information about Charge Syndrome visit the website at http://www.chargesyndrome.org.uk">www.chargesyndrome.org.uk